Hours of interviews with families, researchers and doctors, and a place for Manitobans to bring their questions. Trish runs MRSA while caring for her daughter with Rett syndrome. The hardest problem is that most people have never heard of the condition it exists for.
When a child is diagnosed with Rett syndrome, families are handed a life-altering path with almost no map. The hardest part Trish describes isn't the diagnosis itself. It's that there's no obvious place to ask what happens next. MRSA exists to be that place.
Rett isn't easily diagnosed. It's confirmed by a genetic test that takes time and isn't always ordered, and getting referred to a geneticist is difficult if a doctor doesn't suspect it in the first place. It's often mistaken for autism or other genetic disorders. Until that test comes back, families are waiting without answers.
We've recorded hours of interviews with family members, researchers, doctors and people in the community, covering everything from the science through to what an ordinary Tuesday actually looks like. Nothing else in the Rett space sounds like this. Most pages hand you facts. This one hands you the people, and that's what makes someone stay and listen.
Ride or Stride runs every year in late September. There are outreach programs in schools, and last year a treasure hunt through the Exchange District for First Fridays. Next comes city bus advertising in October 2026 for National Rett Syndrome Awareness Month. For a volunteer-run association, going from a neighbourhood treasure hunt to the side of a Winnipeg Transit bus in a year is real momentum.